Community remembers Kingsley, IA teen after battle with genetic brain disorder

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KINGSLEY, Iowa (KTIV) – A Kingsley, Iowa, teen has died after a 17-month battle with a debilitating genetic brain disorder.

On July 4th, 13-year-old Ryan Bubke lost his battle with adrenoleukodystrophy, which is also known as ALD. It’s a brain disorder that destroys the protective sheath surrounding the nerve cells, which allow us to think and control our muscles.

When Ryan was diagnosed with ALD after a seizure in February 2018, his classmates at Kingsley-Pierson Middle School decided to help the Bubke family in any way they could. They made, and sold “Bubke-Strong” t-shirts to support the family. They also hosted a benefit breakfast for the family, and organized a school-wide sendoff for Ryan, and his family, when they left for their “Make-A-Wish” trip to Hawaii.

Their video was submitted to KTIV’s “Making A Difference” contest, and won the students a trip to Arnolds Park Amusement Park, back in May.

On Wednesday, July 10th, family, friends, and classmates, gathered for Ryan’s funeral at Kingsley-Pierson Middle School.

Matt Breen

Matt Breen

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