Spencer, Iowa (KTIV) — The family of a Spencer, Iowa woman, who is battling a rare form of ALS, also known as Lou Gehrig’s disease, says progress is happening in very small ways, but it’s progress.
Lori Hermstad, the mother of Jaci Hermstad, tells KTIV, last month, Jaci could not move her arm, but that’s not the case right now.
“I’m supporting the weight, but Jaci is doing all of the movement, including holding on to that pen. Let me do it one more time.” said Jaci Hermstad’s Occupational Therapist.
Jaci has made enough progress to move her arm for her Occupational Therapist.
Jaci and her family will be traveling to Minneapolis at the end of September for Jaci’s next infusion of the specially-made and expensive Antisense Oligonucleotide or ASO, that could save her life.
She’s had nearly a half dozen of the infusions, most of them administered in New York over the Summer.
Lori Hermstad says Jaci is helping lead to positive changes for others. A second person, a young man, recently received an infusion of an ASO made for him.
To visit the Facebook page “Cowgirl Up for Jaci : Roping in a CURE for ALS” click here.